Dementia: Support for Caregivers

Overview

Taking care of someone who has Alzheimer's disease or another dementia can be a difficult, stressful, and tiring job. It affects the caregiver's health and ability to rest and can be a source of stress and conflict for the entire household.

The demands of caring for a person who has dementia may cut off caregivers from friends, leisure activities, and other responsibilities. For a caregiver who has health problems, the physical and emotional strain of caregiving can make those problems worse. Fatigue, depression, and sleep problems commonly develop, and caregivers often carry an added emotional burden of feeling worried, guilty, and angry about taking care of the person.

If you are a caregiver, you can benefit by learning as much as you can and taking care of yourself. Learn all you can about the type of dementia that the person you're caring for has and what the future may bring.

Organizations such as the Alzheimer's Association and the Family Caregiver Alliance can provide educational materials as well as information on support groups and services.

Taking care of yourself when you're a caregiver

Taking care of yourself is your most important step as a caregiver. Caregiving can be stressful and cause feelings of depression and anxiety in some people. Here are some important things you need to find time to do—just for yourself.

• Try to take a class on caregiving. You will meet other caregivers and learn new ways to manage challenging situations. To learn about caregiving, contact the Family Caregiver Alliance (www.caregiver.org).
• Get some exercise. You may feel better and sleep better if you exercise. Experts say to aim for at least 2½ hours of moderate activity a week, but any amount of regular exercise may help.
• Eat healthy meals and snacks. When you are busy giving care, it may seem easier to eat fast food than to prepare healthy meals. Healthy eating will give you more energy to carry you through each day.
• Get enough sleep. If you aren't getting enough sleep at night, try to take a nap during the day.
• Make time for an activity you enjoy. For example, make time to read, listen to music, paint, do crafts, or play an instrument—even if you can only do it for a few minutes a day. If you like to go to faith-based activities or take classes, ask a friend or family member to stay with the person you're taking care of for an hour or two once or twice a week so you can do those things.
• Get regular medical checkups. This includes dental checkups. Even if you have always been healthy, you need to stay healthy. Know about the signs of depression, and watch for them not only in the person you are caring for but also in yourself. If you have feelings of lingering sadness or hopelessness, talk with your doctor.
• Get the support you need. Helping a person with health problems can be emotionally difficult. If you are having trouble coping with your feelings, seek advice and counseling from family members, trained mental health professionals, or spiritual advisors.